To learn more about Graves’ disease, including how to navigate the diagnosis, you may want to contact an organization that assists or represents people with the disease. Some of the major organizations include:
Graves’ Disease & Thyroid Foundation (GDATF)
This organization connects individuals with Graves’ disease to information and community support. Visit the GDATF website to find a support group in your area, register for their upcoming webinars and patient events, or connect with videos and other resources that provide the latest info about Graves’ treatments.
Kimberly Dorris, executive director and CEO of the GDATF, encourages you to send in your questions via phone and email. The organization is a patient-centered group, “So we don’t try to give medical advice, but it’s a great place to start. We also have a closed Facebook group for patients, as do many other organizations,” Dorris says.
American Thyroid Association (ATA)
The ATA is a professional organization whose members are physicians and scientists, as well as experts in thyroid diseases. The organization helps connect patients to specialists and publishes research on thyroid diseases. Consider subscribing electronically to their monthly patient newsletter, called Friends of the ATA, for updates on the latest research and information about patient events around the country. You can also read issues of Clinical Thyroidology for the Public on their site.
American Association of Clinical Endocrinology (AACE)
AACE is a professional community for doctors who specialize in endocrinology, but it also has many patient resources and can connect you to AACE member specialists in your area.
Thyroideyes.com
Thyroideyes.com is a website supported by a pharmaceutical company that offers many resources. It has a symptom simulator tool, a symptom survey, plus videos of patient stories. The site also has a specialist locator by ZIP code and a Facebook support group.
TED Community Organization
The TED Community Organization is a nonprofit advocacy group that offers online peer support, educational webinars, and patient podcasts. In November 2025, the organization will be hosting its global Virtual TED Patient & Partner Conference.
