For LGBTQ+ individuals seeking cancer treatment, it can be helpful to look for inclusive healthcare providers, ask many questions, and speak up about any perceived microaggressions.
Find an Inclusive Healthcare Provider
One thing that patients can do is research. The National LGBT Cancer Network lists many LGBTQ+ affirming providers, plus the Gay and Lesbian Medical Association has a provider directory with vetted LGBTQ+ affirming providers. OutCare Health offers provider and patient resources along with a provider database of its own.
There are also resources available at the National LGBT Cancer Project and American Cancer Society.
Talk About Microaggressions Openly
If you do feel misunderstood, you should share your discomfort, anger, and fear — all of the feelings that you experienced, Mitteldorf says.
“Empathize that the provider may not have been aware of how provocative or triggering their treatment suggestions were,” says Mitteldorf, “but be firm in saying that they were indeed triggering. Offer an alternative by saying, ‘I would have felt better and safer had you said this, instead of that.’”
And never hesitate to request a different healthcare provider, whether you need a doctor, nurse, or technician, Mitteldorf says. Though if you live in an isolated or remote area, you may need to stay with the healthcare provider who can treat you first, so you can survive and follow up later, he says.
“Treatment includes feeling safe about the care the provider offers,” Mitteldorf says. “If you don’t feel safe, it will be hard to be treated appropriately.”
Report Microaggressions
If you experience a microaggression, Haviland says to report what happened. “It’s important to report to our healthcare agencies, whether it be a clinic or an institution. Utilize the patient incident reporting system,” she says.
Ussher says that patients should also take an advocate to clinical meetings, know their legal rights of care, and if needed, ask for a referral to another clinician.
Still, there may be instances in which a provider or institution needs to be held accountable. “Raise the alarm. If a hospital is institutionally promoting and supporting homophobic behavior, then absolutely call your local journalist and your local American Civil Liberties Union, attorneys, and make a stink about it,” Mitteldorf says.
But in times of medical emergency, you have to focus on immediate needs, he says.
“Get the treatment you need right away while making a mental note about the microaggressions you experienced,” Mitteldorf says. “After your medical emergency has stabilized, ask to speak to someone in charge. Sending follow-up emails and letters is critical, as a written record is often the spark that initiates action and change.”