Healthcare technology is constantly evolving and has the potential to change the relationship between providers and their patients. A study from the U.S. Department of Veterans Affairs, the Regenstrief Center and the Indiana University School of Medicine examined opinions on personal health data.
Personal health information is different electronic health data because they are used by the patient as opposed to the donor. They are sometimes referred to as patient portals and allow patients to see test results, medications and more health information.
The research team interviewed providers, patients and caregivers affiliated with the Richard L. Roudebush VA Health Center about their perceptions of personal health information and how it can be used.
“During the interviews, patients expressed the possibility of personal health information to deepen their relationship with the provider and allow them to understand. Physicians are interested in obtaining more clinical information to facilitate better care,” he said. heard researcher David Haggstrom. MD, MAS, director of the Regenstrief Center for Public Health Studies, a senior researcher at the VA Health Research Center (HSR & D) Center for Health and Communication (CHIC) and a professor of medicine at IU School of Medicine. “These different perspectives on the value of these data indicate the need for dialogue between physicians and patients to set expectations regarding the use of PHRs.”
Both doctors and patients expressed concern about the workload.
“Already the patient’s network has created more stress for healthcare professionals, and patients are paying attention to it. Careful thinking should be given to how health system and organizations are pushing PHRs because they still provide central control, ”said Dr. Haggstrom.
Next steps for personal health information they include implementing them well, tailoring them to specific environments and making them more friendly.
Dr. Haggstrom is currently leading a five-year clinical trial using a human health record created specifically for cancer. patients. The research team will review both the quality of care and the impact on the patient’s relationship with the service provider.
The study is published in JMIR Human Factors.
David A Haggstrom et al, The Use of Personal Health Information for Communication between Occupational Cancer Survivors, Caregivers, and Service Providers: Interviews and Care Studies in the Human-Computer Network, JMIR Human Factors (2021). DOI: 10.2196 / 16447
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