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Six stages of engagement in ADHD treatment revealed in new, diverse study

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Six stages of involvement in the treatment of attention deficit / hyperactivity disorder (ADHD) are researchers at the Boston Medical Center based on diverse studies involving parents of children with predominantly racial and ethnic minorities in ADHD. Reported by.Was announced in PediatricsThis new framework introduces parental experiences at various stages of family navigation from diagnosis to treatment, and interactions between families, families, communities, and systems that serve children, including medical and educational care. Notified by.

ADHD is one of the most common neurodevelopmental disorders in childhood and is a chronic childhood disorder that can persist into adulthood.This condition is treatable, but racial and / or ethnic minority families are experiencing disproportionate barriers to treatment. engagement..

This study is the first to provide a comprehensive framework with developmental trajectories for parents and providers to navigate together. Researchers have found that typical measurements of treatment involvement, such as missed appointments and prescriptions, family Involvement in care.

“This framework is family-centric and focuses on breaking down the barriers faced by families, from pre-diagnosis to the preparation of children with ADHD in the future,” said Pediatric Integrated Behavior, Reach Director of the ADHD Research Program. Director Andrea Spencer said. Health, and a child, adolescent and adult psychiatrist at the Boston Medical Center. “This framework can serve as a model for developing more beneficial engagement interventions for families.”

The six stages of engagement identified by the research team are:

  1. Normalization and hesitation
  2. Stigma and fear
  3. Action and advocacy
  4. Communication and navigation
  5. Care and verification
  6. Preparation and migration

These stages of engagement develop within the family in a manner similar to typical developmental processes and are hampered by providers and parents at different stages of the process. Known as stage mismatch, this can cause difficulties and conflicts and prevent involvement in treatment. Researchers have found that patients who find it difficult to resolve the early stages of the engagement process can prevent them from successfully navigating the later stages of the process.

At each stage, we can support the family at that stage and provide interventions to make the journey to the next stage a success. During Stage 2, parents explained that racial or ethnic discrimination crossed ADHD stigma in their community, which led to delayed care. Interventions address discrimination and prejudice among healthcare providers and address misconceptions about ADHD within families and communities.

Spencer, an assistant professor of psychiatry at Boston University School of Medicine, said: “Using the SixStages framework, the healthcare system can better match the needs of children with ADHD, where families are at different stages of the engagement process.”

The study included 41 diverse, urban, low-income families with racial and ethnic minority adolescents, who are most likely to have difficulty engaging in care. is. English, Spanish, and Haitian Creole-speaking families who worked in pediatrics at Safetynet Hospital asked questions to help researchers understand how families came to treat their children. I answered. Between June 2018 and October 2019, a detailed interview was conducted with a family member aged 3 to 17 years who was being treated for ADHD. Also, the path to diagnosis and treatment of ADHD, community attitudes about ADHD, and other factors that influence access to treatment and decision making.

Future studies include perspectives from families with undiagnosed and untreated children, including years of treatment and age of diagnosis, and how families of a particular race or ethnic group differ throughout the stage. It is necessary to study whether it progresses. Notify this model.


Racial and ethnic disparities in the diagnosis and treatment of ADHD


For more information:
Six stages of involvement in ADHD treatment described by Andrea E. Spencer and other diverse urban parents, Pediatrics (2021). DOI: 10.1542 / peds.2021-051261

Quote: Https: //medicalxpress.com/news/2021-09-stages-engagement-adhd-treatment-revealed.html in a variety of new studies (September 16, 2021) obtained on September 16, 2021. Six stages of involvement in ADHD treatment revealed

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