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Older adults with advanced bladder cancer prioritize honest information about what to expect

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The average age for bladder cancer is 73, and the vast majority of those suffering from the disease are in their 70s and 80s.

Long time no see inside cancer care is that so elderly patients they want more paternal care, in which they exercise the authority of the caregiver and may not ask too many questions or seek more in-depth information.

However, a recently published study examines the care planning factors of the elderly with development bladder pain find that patients want more honest communication with them caregiversincluding what to expect remedyhow their living conditions may change, and how their families can participate in the care system.

“What we’ve learned is that we need to work harder to find ways to treat patients early in the treatment process,” said study author Elizabeth Kessler, MD, a member of the University of Colorado Cancer Center and a professor. in the field of medicine in the CU School. Remedy. “We need to continue to work on ways to enable these discussions.”

Life experience with cancer

The study stems, in part, from a previous study by Kessler sponsored by an award presented by American medical scientists. In one study, she and her colleagues reviewed data from the National Center for Cancer Control, Epidemiology, and End Results Program (SEER), where it found that the majority of older people with bladder cancer do not receive treatment for the disease. himself.

“If that happens, if we just look at the claims and see that it happens, there has to be more of a reason,” Kessler said. “Is it because of aging? Because patients don’t want treatment? We want to learn more about what is best for patients as we think about how the first treatment plan is designed for patients.”

Kessler and her researchers interviewed ten former bladder cancer patients through focus groups and individuals. Most of those surveyed have already been diagnosed with bladder cancer which has either recurred or has progressed.

“We found that these patients continued to volunteer to diagnose cancer early,” Kessler said. “They can remember the words, they can remember the first time they were diagnosed with cancer. Although it was first diagnosed and can be cured, but I think it would be such a change when they feel they have this condition. it’s bigger. But for many it’s not, it seems more of a sign on the road. “

This perspective from the study participants highlights the impact of early-stage cancer, and how it can shape more experiences and perspectives on living with the disease, Kessler said. “The words used by the health care team are important. For example, describing something as ‘rare’ has led some of our patients to assume that it is difficult to treat — which is not always the case.”

Involve patients in care discussions

Among the themes that emerged from the interview with the study participants included the continued interest in first, honest, and truthful communication from caregivers. They expressed a desire to get information about what to expect along with changes for them physical abilitymovement, and independence.

“We’ve learned that they really want to get involved in their care and have a positive outlook on their care,” Kessler said. “They want to get involved early in the process and they don’t feel like they’re waiting or looking for information.”

Also, while there were some differences between study participants regarding how they liked their partners, who were couples or relativesthey are in the process of discussing their care, expressing a desire to understand what the caregiver’s role will be.

The researchers further found that the study participants did not feel that the discussion of their perceptions and treatment should only happen to them. medical doctorsbut may occur with nurses, paramedics, or other members of the informed care team.

Results from the study inform pilot ABC123: Process for Managing Underwater Underwater Underwater Underwater Underneath Underwater Underneath Underwater Underneath Underwater Underneath Underwater Underneath Underwater Underneath Underwater Underneath the work of a pilot support from the American Cancer Society led by Kessler. The pilot’s goal, which is nearing completion, is to test a system that will balance the control of the developing bladder. cancer patients and considering the most important values ​​and values ​​along with their health and physical activity.

“What we’ve found is that patients really want to talk about their vision and their treatment from the beginning,” Kessler said. “Instead of focusing on balance at the end of life, we are now looking at ways to create a system that is more effective in caring for people from the very beginning.”


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Learn more:
Sarah R. Jordan et al, Programs for the care of elderly patients with bladder cancer, Journal of Geriatric Oncology (2022). DOI: 10.1016 / j.jgo.2022.01.010

hint: Adults with bladder cancer give priority to factual information about what to expect (2022, July 8) Retrieved 8 July 2022 from https://medicalxpress.com/news/2022- 07-older-adults-advanced-bladder-cancer.html

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