A handful of celebrities, social media influencers, and now hundreds of local business owners and community members have joined in to raise hundreds of thousands of dollars to save the lives of Santa Clarita boys.
Damian Markham, a Newhall resident who turned two in May, for his life to fight a deadly disease known as Niemann-Pick’s disease, which is likened to “Baby Alzheimer’s disease.” And we are working on the fight against time.
In the past few weeks, and within just two months of his diagnosis, Markham’s parents, Brittany and Brock, have only used a church network of friends, family and church members to pursue a cure for their grandchildren. Not even five to the other ten children in the United States with Niemann-Pick disease — but also to raise awareness about the fatal effects of the disease.
In addition to launching GoFundMe, the two parents shared a story with the local media and residents. Eventually, actress Amanda Seyfried, known for her roles in “Les Miserables,” “Mamma Mia,” and “Mean Girls,” shared Damian’s story on social media.
Seyfried’s castmate, TikTok star Youth Pastor Ryan and other influencers shared the story, and eventually Damian’s GoFundMe fundraising activities received donations from around the country and around the world.
“It’s about $ 535,000 in total,” said Brittany Markham, referring to both those received directly at GoFundMe and Venmo. “And they’re almost $ 20 donations. People just show up and share it with their friends.”
“It makes a lot of sense to me if I can do this without financially burdening anyone,” she added. “The power of the community is amazing.”
Markhams has partnered with the Wylder Nation Foundation, a non-profit organization whose mission is to accelerate the discovery and development of treatment options for children with Niemann-Pick disease. According to a young couple, the money raised will be used for the Foundation and two promising treatments in the near future that are in desperate need of money to speed up the timeline and pave the way for clinical trials. I will.
Parents say treatment can save Damian’s life. But without treatment and other research breakthroughs, the disease can be fatal to a son by the age of five.
“We are certainly on the verge of time just because Damian’s disease is unstoppable, ongoing, and has lead time since we made money,” Brittany said. “Making money doesn’t save Damian’s life. It’s spending money.”
She said researchers believed that $ 4-5 million would probably exceed the limits of their research — and that’s her funding goal.
To support the family, many vendors worked with Aloha All Ways with Lani to host the Aloha All Ways Multi-Vendor Event at 26027 Huntington Lane this Saturday from 10am to 4pm. Raffle tickets will be sold to support fundraising activities during the event.
For more information on Aloha All Ways multi-vendor events, please visit our Events page: https://fb.me/e/QBoyagFD..
For more information and donations to Damian’s GoFundMe, please visit: https://www.gofundme.com/f/please-save-damian?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer..
Celebrities, community join in fight to save Santa Clarita boy’s life Source link Celebrities, community join in fight to save Santa Clarita boy’s life